Our little girl has been through so much in her short life already. Eva was diagnosed with Juvenile Idiopathic Arthritis in September, 2017. She was almost 3 years old. Her journey was a very painful and difficult one before figuring out she had JIA. It started out in her ankle, almost not long after she started walking. She developed a limp. This was something that we didn't suspect anything of until later on because, we thought she would grow out of it. It became worse in the summer of 2017. She was unable to keep up with kids her age, she became very tired, and started to lose weight. These symptoms were not enough for doctors to figure out what was wrong. On top of all of this Eva has Celiac Disease, which we were thinking could be part of all of this because it is another auto immune disease. One night, in August of 2017, Eva woke up in excruciating pain, this was one of the scariest times in our lives. As parents, you just want to do everything you can to make it better, but we couldn't. We felt so helpless. Eva became much worse. She was so stiff, she couldn't hold her head up. Parts of her body started to swell up. Her neck would lock up in a downward position and prevent her from looking up, she was actually so close to being tested for meningitis. She had difficulties walking, and we had to carry her around. She had difficulties eating and swallowing her food. Simple things, such as diaper changes, baths, lying down, and even sitting became so difficult because of her pain. We had to be so careful with how we touched her and moved her because she would cry from pain. Some days all she could do was lie still on the couch. We spent many hours in the hospital, had an over night visit, even traveled to Saskatoon hospital. Eva went through many tests, and we kept getting told it was viral and it would go away. In our hearts and eyes, this was no virus. Finally we got a referral to a rheumatologist, where we got told that Eva has JIA, another auto immune disease. Eva was affected in her neck, jaw, fingers, wrists, knees, and ankles. We began her treatment right away and saw significant improvement. Eva took a 1 1/2 month course of prednisone, following and currently taking weekly injections of methotrexate. This is now Eva's way of life. She is currently doing so much better. She will always have many doctor visits and will be taking methotrexate for a long time.
Eva's strength through all of this has been amazing. Through all of her pain, she still made us laugh. Eva's personality is one of a kind. She is smart, outgoing, funny, witty, loving, gentle, and has such a zest for life. She is loved so much by all her family.
This disease can be so debilitating for kids. It is so difficult to watch your child be in pain, also having to give your child a weekly injection. This is why we decided to do this and why we are asking for your help in donating to Arthritis. You can join us in the walk with Team Eva DesRoches, or you can donate. Please help us and our precious little girl, Eva DesRoches, to get closer to finding a cure for Arthritis!!
Thankyou so much for your support!!