We are walking for our eldest daughter, Jayna, who was diagnosed in 2014 at the age of three and a half with Systemic Juvenile Idiopathic Arthritis (sJIA) and Macrophage Activation Syndrome (MAS). Both of these are rare conditions that not only affect the joints but can also lead to widespread inflammation and organ failure.
Jayna has lived with this stubborn autoinflammatory disease for more than half of her young life through endless medical appointments, hospital stays and uncomfortable treatments/procedures. She is on immunosuppressant drugs that have weakened her immune system making her more susceptible to infections, which at times can hinder her treatment regimen. While there is no cure or standard treatment for this sJIA or MAS, we know that she is a strong girl with an indomitable spirit, and will keep fighting to one day to be in remission.
This will be our little warrior’s fifth year fighting this disease, and the Walk for Arthritis 10th anniversary, so fitting that we will be able to participate this year. What better way to raise awareness for this silent disease and help support healthier outcomes for people (kids/adults) affected by Arthritis.